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The Resource Assisted living facilities residents' and relatives' preferences for family access to their medical and personal information, by James Richardson, (electronic resource)

Assisted living facilities residents' and relatives' preferences for family access to their medical and personal information, by James Richardson, (electronic resource)

Creator
Contributor
Summary
The purpose of this study is to explore privacy preferences of elderly residents and their relatives at assisted living facilities. In the past year, there has been a large increase in the interest and concept of accessing medical information as a right for every American. The Health Information Technology for Economic and Clinical Health Act (HITECH Act) as well as the Office of National Coordinator for Health IT's Nationwide Health Information Network (NHIN) project are prime examples of this increased awareness and interest. This pilot study focuses on just the privacy access rights for family access. To explore this, a structured interview questionnaire was created and administered to 12 participants, 10 of whom were residents at two assisted living facilities and two of whom were relatives of residents. The most interesting result was that some residents understand "access" to mean that the person accessing the information can also act upon that information. An actionable discovery is that illness has a huge impact on how often the participants wanted to review their access preferences, as well as what their preferences are. Further study is required to fully explore these findings
Language
eng
Work
Publication
Extent
1 online resource (vii, 67 pages)
Note
  • The entire dissertation/thesis text is included in the research.pdf file; the official abstract appears in the short.pdf file (which also appears in the research.pdf); a non-technical general description, or public abstract, appears in the public.pdf file
  • Title from PDF of title page (University of Missouri--Columbia, viewed on August 2, 2010)
  • Thesis advisor: David Moxley
Instance
Label
Assisted living facilities residents' and relatives' preferences for family access to their medical and personal information
Title
Assisted living facilities residents' and relatives' preferences for family access to their medical and personal information
Statement of responsibility
by James Richardson
Creator
Contributor
Thesis advisor
Subject
Genre
Language
eng
Summary
The purpose of this study is to explore privacy preferences of elderly residents and their relatives at assisted living facilities. In the past year, there has been a large increase in the interest and concept of accessing medical information as a right for every American. The Health Information Technology for Economic and Clinical Health Act (HITECH Act) as well as the Office of National Coordinator for Health IT's Nationwide Health Information Network (NHIN) project are prime examples of this increased awareness and interest. This pilot study focuses on just the privacy access rights for family access. To explore this, a structured interview questionnaire was created and administered to 12 participants, 10 of whom were residents at two assisted living facilities and two of whom were relatives of residents. The most interesting result was that some residents understand "access" to mean that the person accessing the information can also act upon that information. An actionable discovery is that illness has a huge impact on how often the participants wanted to review their access preferences, as well as what their preferences are. Further study is required to fully explore these findings
Cataloging source
MMU
http://library.link/vocab/creatorDate
1984-
http://library.link/vocab/creatorName
Richardson, James D.
Degree
M.S.
Dissertation year
2010.
Granting institution
University of Missouri-Columbia
Index
no index present
Literary form
non fiction
Nature of contents
  • dictionaries
  • bibliography
  • theses
NLM call number
WX 173
http://library.link/vocab/relatedWorkOrContributorDate
1970-
http://library.link/vocab/relatedWorkOrContributorName
Moxley, David E.
http://library.link/vocab/subjectName
  • Older people
  • Medical records
  • Privacy, Right of
  • Confidential communications
  • Access to Information
  • Privacy
  • Aged
  • Confidentiality
  • Medical Records
Target audience
specialized
Label
Assisted living facilities residents' and relatives' preferences for family access to their medical and personal information, by James Richardson, (electronic resource)
Instantiates
Publication
Note
  • The entire dissertation/thesis text is included in the research.pdf file; the official abstract appears in the short.pdf file (which also appears in the research.pdf); a non-technical general description, or public abstract, appears in the public.pdf file
  • Title from PDF of title page (University of Missouri--Columbia, viewed on August 2, 2010)
  • Thesis advisor: David Moxley
Bibliography note
Includes bibliographical references
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Control code
651715791
Extent
1 online resource (vii, 67 pages)
Form of item
electronic
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Other physical details
illustrations (some color).
Specific material designation
remote
System control number
(OCoLC)651715791
Label
Assisted living facilities residents' and relatives' preferences for family access to their medical and personal information, by James Richardson, (electronic resource)
Publication
Note
  • The entire dissertation/thesis text is included in the research.pdf file; the official abstract appears in the short.pdf file (which also appears in the research.pdf); a non-technical general description, or public abstract, appears in the public.pdf file
  • Title from PDF of title page (University of Missouri--Columbia, viewed on August 2, 2010)
  • Thesis advisor: David Moxley
Bibliography note
Includes bibliographical references
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Control code
651715791
Extent
1 online resource (vii, 67 pages)
Form of item
electronic
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Other physical details
illustrations (some color).
Specific material designation
remote
System control number
(OCoLC)651715791

Subject

Genre

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