Coverart for item
The Resource Ethics and research with children : a case-based approach, Eric Kodish, editor

Ethics and research with children : a case-based approach, Eric Kodish, editor

Label
Ethics and research with children : a case-based approach
Title
Ethics and research with children
Title remainder
a case-based approach
Statement of responsibility
Eric Kodish, editor
Contributor
Subject
Genre
Language
eng
Summary
In this edited volume, a diverse group of scholars present and discuss challenging cases in the field of paediatric research ethics. After years of debate and controversy, fundamental questions about the morality of paediatric research persist: is it ever permissible to use a child as a means to an end? How much authority should parents have over decisions about research that involves young children? What should be the role of the older child in decisions about research participation? How do the dynamics of hope and desperation influence decisions about research involving dying children? Should children or their parents be paid for participation in research? What about economic incentives for doctors, researchers and the pharmaceutical industry? Most importantly, how can the twin goals of access to the benefits of clinical research and protection from research risk be reconciled? Following an introductory overview by editor Eric David Kodish, the book is divided into three sections of case studies: Research Involving Healthy Children, Research Involving At Risk Children, and Research Involving Children with Serious Illness.; Each case raises compelling ethical issues, and the analysis presented in each chapter illuminate the challenges posed across a wide spectrum of both research protocols and stories of individual case-based approach, this book provides a balanced and through account of the enduring dilemmas that arise when children become research subjects
Member of
Action
digitized
Cataloging source
N$T
Dewey number
174.2/8
Index
index present
LC call number
RJ47
LC item number
.E839 2005eb
Literary form
non fiction
Nature of contents
  • dictionaries
  • bibliography
NLM call number
  • 2005 D-808
  • WS 21
NLM item number
E84 2005
http://library.link/vocab/relatedWorkOrContributorName
Kodish, Eric
http://library.link/vocab/subjectName
  • Pediatrics
  • Medical ethics
  • Children
  • Pediatrics
  • Child
  • Research Subjects
  • Informed Consent
  • United States
  • Pédiatrie
  • Éthique médicale
  • Enfants
  • MEDICAL
  • Children
  • Medical ethics
  • Pediatrics
  • Ethik
  • Forschung
  • Kind
  • Medizin
Label
Ethics and research with children : a case-based approach, Eric Kodish, editor
Instantiates
Publication
Antecedent source
unknown
Bibliography note
Includes bibliographical references and index
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
Ethics and research with children : an introduction / Eric Kodish -- Evaluating benefits and harms in research on healthy children / Paul B. Miller and Charles Weijer -- Optimizing risks and benefits : the case of rotavirus vaccine / Susan E. Coffin and Robert M. Nelson -- Bioethics meets the barrio : community-based research involving children / Molly Martin and John Lantos -- Adolescent research and parental permission / Lauren K. Collogan and Alan R. Fleischman -- Recruitment of pregnant, minor adolescents and minor adolescents at risk of pregnancy into longitudinal, observational research : the case of the National Children's Study / John Santelli [and others] -- The ethics of newborn screening diabetes research / Lainie Friedman Ross -- Payments for participation of children in research / Douglas S. Diekema -- Justice, lead, and environmental research involving children / Robert M. Nelson -- Behavioral research with children : the fenfluramine challenge / Gerald P. Koocher -- The ethics of predictive genetic testing in prevention trials involving adolescents / Gail Geller -- Research ethics and maternal-fetal surgery / Rebecca Dresser -- Testing drugs in developing countries : pediatric research ethics in an international context / Michelle Eder -- Research and innovation in pediatric surgery : the problem of hypoplastic left-heart syndrome / Erin Flanagan-Klygis and Joel E. Frader -- Near the boundary of research : roles, responsibilities, and resource allocation / Christopher Church [and others] -- Children and placebos / Jessica Wilen Berg -- When eligibility criteria clash with personal treatment choice : a dilemma of clinical research / Benjamin Wilfond and Fabio Candotti -- Involving children with life-shortening illnesses in decisions about participation in clinical research : a proposal for shuttle diplomacy and negotiation / Myra Bluebond-Langner, Amy DeCicco, and Jean Belasco
Control code
61342661
Dimensions
unknown
Extent
1 online resource (xiv, 361 pages)
File format
unknown
Form of item
online
Isbn
9780195171785
Lccn
2004008004
Level of compression
unknown
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
http://library.link/vocab/ext/overdrive/overdriveId
042792
Quality assurance targets
not applicable
Reformatting quality
unknown
Reproduction note
Electronic reproduction.
Sound
unknown sound
Specific material designation
remote
System control number
(OCoLC)61342661
System details
Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002.
Label
Ethics and research with children : a case-based approach, Eric Kodish, editor
Publication
Antecedent source
unknown
Bibliography note
Includes bibliographical references and index
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
Ethics and research with children : an introduction / Eric Kodish -- Evaluating benefits and harms in research on healthy children / Paul B. Miller and Charles Weijer -- Optimizing risks and benefits : the case of rotavirus vaccine / Susan E. Coffin and Robert M. Nelson -- Bioethics meets the barrio : community-based research involving children / Molly Martin and John Lantos -- Adolescent research and parental permission / Lauren K. Collogan and Alan R. Fleischman -- Recruitment of pregnant, minor adolescents and minor adolescents at risk of pregnancy into longitudinal, observational research : the case of the National Children's Study / John Santelli [and others] -- The ethics of newborn screening diabetes research / Lainie Friedman Ross -- Payments for participation of children in research / Douglas S. Diekema -- Justice, lead, and environmental research involving children / Robert M. Nelson -- Behavioral research with children : the fenfluramine challenge / Gerald P. Koocher -- The ethics of predictive genetic testing in prevention trials involving adolescents / Gail Geller -- Research ethics and maternal-fetal surgery / Rebecca Dresser -- Testing drugs in developing countries : pediatric research ethics in an international context / Michelle Eder -- Research and innovation in pediatric surgery : the problem of hypoplastic left-heart syndrome / Erin Flanagan-Klygis and Joel E. Frader -- Near the boundary of research : roles, responsibilities, and resource allocation / Christopher Church [and others] -- Children and placebos / Jessica Wilen Berg -- When eligibility criteria clash with personal treatment choice : a dilemma of clinical research / Benjamin Wilfond and Fabio Candotti -- Involving children with life-shortening illnesses in decisions about participation in clinical research : a proposal for shuttle diplomacy and negotiation / Myra Bluebond-Langner, Amy DeCicco, and Jean Belasco
Control code
61342661
Dimensions
unknown
Extent
1 online resource (xiv, 361 pages)
File format
unknown
Form of item
online
Isbn
9780195171785
Lccn
2004008004
Level of compression
unknown
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
http://library.link/vocab/ext/overdrive/overdriveId
042792
Quality assurance targets
not applicable
Reformatting quality
unknown
Reproduction note
Electronic reproduction.
Sound
unknown sound
Specific material designation
remote
System control number
(OCoLC)61342661
System details
Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002.

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