Coverart for item
The Resource Governing biobanks : understanding the interplay between law and practice, by Jane Kaye [and others]

Governing biobanks : understanding the interplay between law and practice, by Jane Kaye [and others]

Label
Governing biobanks : understanding the interplay between law and practice
Title
Governing biobanks
Title remainder
understanding the interplay between law and practice
Statement of responsibility
by Jane Kaye [and others]
Contributor
Subject
Genre
Language
eng
Summary
Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic predisposition. However, they also raise considerable challenges for existing legal frameworks and research governance structures. This book critically examines the current governance structures in place for biobanks in England and Wales. It shows that the technologies, techniques and practices involved in biobanking do not always conform neatly to existing legal principles and frameworks that apply to other areas of medical research. Using a socio-legal approach, including interview data gathered from the scientific community, this book provides unique insights and makes recommendations about appropriate governance mechanisms for biobanking in the future. It also explores the issues around the secondary use of information, such as consent and how to protect privacy, when biobanks are accessed by a number of different third parties. These issues have relevance both within England and Wales and to a wide international audience, as well as for other areas where large datasets are used.--Back cover
Member of
Cataloging source
N$T
Dewey number
344.4204194
Index
index present
LC call number
K3611.H86
LC item number
G68 2012eb
Literary form
non fiction
Nature of contents
  • dictionaries
  • bibliography
NLM call number
  • 2012 D-479
  • QU 23
http://library.link/vocab/relatedWorkOrContributorDate
1962-
http://library.link/vocab/relatedWorkOrContributorName
Kaye, Jane
http://library.link/vocab/subjectName
  • Biobanks
  • Biobanks
  • Biobanks
  • Biological Specimen Banks
  • Biological Specimen Banks
  • Databases, Genetic
  • Databases, Genetic
  • Government Regulation
  • Public Policy
  • England
  • Wales
  • Medical & healthcare law
  • LAW
  • Biobanks
  • Great Britain
Label
Governing biobanks : understanding the interplay between law and practice, by Jane Kaye [and others]
Instantiates
Publication
Antecedent source
unknown
Bibliography note
Includes bibliographical references and index
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
  • Governance in practice : patterns of awareness and engagement
  • Susan M.C. Gibbons and Andrew Smart
  • General attitudes to governance
  • Susan M.C. Gibbons and Andrew Smart
  • Attitudes to particular laws and governing bodies
  • Susan M.C. Gibbons and Andrew Smart
  • Preferences for governance
  • Susan M.C. Gibbons and Andrew Smart
  • Enacting governance : the case of access
  • Catherine Heeney and Andrew Smart
  • From an idea to a project
  • Reflections on practice and governance
  • Jane Kaye
  • Ethics and the governance of biobanks
  • Catherine Heeney and Michael Parker
  • Jane Kaye [and others]
  • Embedding biobanks in a changing context
  • Jane Kaye
  • Mapping the regulatory space
  • Susan M.C. Gibbons
  • Dynamic networks of practice
  • Catherine Heeney
Control code
802279445
Dimensions
unknown
Extent
1 online resource (x, 370 pages)
File format
unknown
Form of item
online
Isbn
9781472565846
Level of compression
unknown
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Other control number
9786613773982
http://library.link/vocab/ext/overdrive/overdriveId
  • 377398
  • 87d0e0d9-64b6-4b79-b65f-2aa511ccb223
Quality assurance targets
not applicable
Reformatting quality
unknown
Sound
unknown sound
Specific material designation
remote
System control number
(OCoLC)802279445
Label
Governing biobanks : understanding the interplay between law and practice, by Jane Kaye [and others]
Publication
Antecedent source
unknown
Bibliography note
Includes bibliographical references and index
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
  • Governance in practice : patterns of awareness and engagement
  • Susan M.C. Gibbons and Andrew Smart
  • General attitudes to governance
  • Susan M.C. Gibbons and Andrew Smart
  • Attitudes to particular laws and governing bodies
  • Susan M.C. Gibbons and Andrew Smart
  • Preferences for governance
  • Susan M.C. Gibbons and Andrew Smart
  • Enacting governance : the case of access
  • Catherine Heeney and Andrew Smart
  • From an idea to a project
  • Reflections on practice and governance
  • Jane Kaye
  • Ethics and the governance of biobanks
  • Catherine Heeney and Michael Parker
  • Jane Kaye [and others]
  • Embedding biobanks in a changing context
  • Jane Kaye
  • Mapping the regulatory space
  • Susan M.C. Gibbons
  • Dynamic networks of practice
  • Catherine Heeney
Control code
802279445
Dimensions
unknown
Extent
1 online resource (x, 370 pages)
File format
unknown
Form of item
online
Isbn
9781472565846
Level of compression
unknown
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Other control number
9786613773982
http://library.link/vocab/ext/overdrive/overdriveId
  • 377398
  • 87d0e0d9-64b6-4b79-b65f-2aa511ccb223
Quality assurance targets
not applicable
Reformatting quality
unknown
Sound
unknown sound
Specific material designation
remote
System control number
(OCoLC)802279445

Library Locations

    • Thomas Jefferson LibraryBorrow it
      1 University Blvd, St. Louis, MO, 63121, US
      38.710138 -90.311107
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