The Resource Governing biobanks : understanding the interplay between law and practice, by Jane Kaye [and others]
Governing biobanks : understanding the interplay between law and practice, by Jane Kaye [and others]
Resource Information
The item Governing biobanks : understanding the interplay between law and practice, by Jane Kaye [and others] represents a specific, individual, material embodiment of a distinct intellectual or artistic creation found in University of Missouri-St. Louis Libraries.This item is available to borrow from 1 library branch.
Resource Information
The item Governing biobanks : understanding the interplay between law and practice, by Jane Kaye [and others] represents a specific, individual, material embodiment of a distinct intellectual or artistic creation found in University of Missouri-St. Louis Libraries.
This item is available to borrow from 1 library branch.
- Summary
- Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic predisposition. However, they also raise considerable challenges for existing legal frameworks and research governance structures. This book critically examines the current governance structures in place for biobanks in England and Wales. It shows that the technologies, techniques and practices involved in biobanking do not always conform neatly to existing legal principles and frameworks that apply to other areas of medical research. Using a socio-legal approach, including interview data gathered from the scientific community, this book provides unique insights and makes recommendations about appropriate governance mechanisms for biobanking in the future. It also explores the issues around the secondary use of information, such as consent and how to protect privacy, when biobanks are accessed by a number of different third parties. These issues have relevance both within England and Wales and to a wide international audience, as well as for other areas where large datasets are used.--Back cover
- Language
- eng
- Extent
- 1 online resource (x, 370 pages)
- Contents
-
- Governance in practice : patterns of awareness and engagement
- Susan M.C. Gibbons and Andrew Smart
- General attitudes to governance
- Susan M.C. Gibbons and Andrew Smart
- Attitudes to particular laws and governing bodies
- Susan M.C. Gibbons and Andrew Smart
- Preferences for governance
- Susan M.C. Gibbons and Andrew Smart
- Enacting governance : the case of access
- Catherine Heeney and Andrew Smart
- From an idea to a project
- Reflections on practice and governance
- Jane Kaye
- Ethics and the governance of biobanks
- Catherine Heeney and Michael Parker
- Jane Kaye [and others]
- Embedding biobanks in a changing context
- Jane Kaye
- Mapping the regulatory space
- Susan M.C. Gibbons
- Dynamic networks of practice
- Catherine Heeney
- Isbn
- 9781472565846
- Label
- Governing biobanks : understanding the interplay between law and practice
- Title
- Governing biobanks
- Title remainder
- understanding the interplay between law and practice
- Statement of responsibility
- by Jane Kaye [and others]
- Subject
-
- Wales
- Biobanks -- Law and legislation
- Biobanks -- Law and legislation
- Biobanks -- Law and legislation -- Great Britain
- Biobanks -- Management
- Biological Specimen Banks -- ethics
- Biological Specimen Banks -- legislation & jurisprudence
- Databases, Genetic -- ethics
- Databases, Genetic -- legislation & jurisprudence
- Electronic books
- England
- Government Regulation
- Great Britain
- LAW -- Administrative Law & Regulatory Practice
- Medical & healthcare law
- Public Policy
- Language
- eng
- Summary
- Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic predisposition. However, they also raise considerable challenges for existing legal frameworks and research governance structures. This book critically examines the current governance structures in place for biobanks in England and Wales. It shows that the technologies, techniques and practices involved in biobanking do not always conform neatly to existing legal principles and frameworks that apply to other areas of medical research. Using a socio-legal approach, including interview data gathered from the scientific community, this book provides unique insights and makes recommendations about appropriate governance mechanisms for biobanking in the future. It also explores the issues around the secondary use of information, such as consent and how to protect privacy, when biobanks are accessed by a number of different third parties. These issues have relevance both within England and Wales and to a wide international audience, as well as for other areas where large datasets are used.--Back cover
- Cataloging source
- N$T
- Dewey number
- 344.4204194
- Index
- index present
- LC call number
- K3611.H86
- LC item number
- G68 2012eb
- Literary form
- non fiction
- Nature of contents
-
- dictionaries
- bibliography
- NLM call number
-
- 2012 D-479
- QU 23
- http://library.link/vocab/relatedWorkOrContributorDate
- 1962-
- http://library.link/vocab/relatedWorkOrContributorName
- Kaye, Jane
- http://library.link/vocab/subjectName
-
- Biobanks
- Biobanks
- Biobanks
- Biological Specimen Banks
- Biological Specimen Banks
- Databases, Genetic
- Databases, Genetic
- Government Regulation
- Public Policy
- England
- Wales
- Medical & healthcare law
- LAW
- Biobanks
- Great Britain
- Label
- Governing biobanks : understanding the interplay between law and practice, by Jane Kaye [and others]
- Antecedent source
- unknown
- Bibliography note
- Includes bibliographical references and index
- Carrier category
- online resource
- Carrier category code
-
- cr
- Carrier MARC source
- rdacarrier
- Color
- multicolored
- Content category
- text
- Content type code
-
- txt
- Content type MARC source
- rdacontent
- Contents
-
- Governance in practice : patterns of awareness and engagement
- Susan M.C. Gibbons and Andrew Smart
- General attitudes to governance
- Susan M.C. Gibbons and Andrew Smart
- Attitudes to particular laws and governing bodies
- Susan M.C. Gibbons and Andrew Smart
- Preferences for governance
- Susan M.C. Gibbons and Andrew Smart
- Enacting governance : the case of access
- Catherine Heeney and Andrew Smart
- From an idea to a project
- Reflections on practice and governance
- Jane Kaye
- Ethics and the governance of biobanks
- Catherine Heeney and Michael Parker
- Jane Kaye [and others]
- Embedding biobanks in a changing context
- Jane Kaye
- Mapping the regulatory space
- Susan M.C. Gibbons
- Dynamic networks of practice
- Catherine Heeney
- Control code
- 802279445
- Dimensions
- unknown
- Extent
- 1 online resource (x, 370 pages)
- File format
- unknown
- Form of item
- online
- Isbn
- 9781472565846
- Level of compression
- unknown
- Media category
- computer
- Media MARC source
- rdamedia
- Media type code
-
- c
- Other control number
- 9786613773982
- http://library.link/vocab/ext/overdrive/overdriveId
-
- 377398
- 87d0e0d9-64b6-4b79-b65f-2aa511ccb223
- Quality assurance targets
- not applicable
- Reformatting quality
- unknown
- Sound
- unknown sound
- Specific material designation
- remote
- System control number
- (OCoLC)802279445
- Label
- Governing biobanks : understanding the interplay between law and practice, by Jane Kaye [and others]
- Antecedent source
- unknown
- Bibliography note
- Includes bibliographical references and index
- Carrier category
- online resource
- Carrier category code
-
- cr
- Carrier MARC source
- rdacarrier
- Color
- multicolored
- Content category
- text
- Content type code
-
- txt
- Content type MARC source
- rdacontent
- Contents
-
- Governance in practice : patterns of awareness and engagement
- Susan M.C. Gibbons and Andrew Smart
- General attitudes to governance
- Susan M.C. Gibbons and Andrew Smart
- Attitudes to particular laws and governing bodies
- Susan M.C. Gibbons and Andrew Smart
- Preferences for governance
- Susan M.C. Gibbons and Andrew Smart
- Enacting governance : the case of access
- Catherine Heeney and Andrew Smart
- From an idea to a project
- Reflections on practice and governance
- Jane Kaye
- Ethics and the governance of biobanks
- Catherine Heeney and Michael Parker
- Jane Kaye [and others]
- Embedding biobanks in a changing context
- Jane Kaye
- Mapping the regulatory space
- Susan M.C. Gibbons
- Dynamic networks of practice
- Catherine Heeney
- Control code
- 802279445
- Dimensions
- unknown
- Extent
- 1 online resource (x, 370 pages)
- File format
- unknown
- Form of item
- online
- Isbn
- 9781472565846
- Level of compression
- unknown
- Media category
- computer
- Media MARC source
- rdamedia
- Media type code
-
- c
- Other control number
- 9786613773982
- http://library.link/vocab/ext/overdrive/overdriveId
-
- 377398
- 87d0e0d9-64b6-4b79-b65f-2aa511ccb223
- Quality assurance targets
- not applicable
- Reformatting quality
- unknown
- Sound
- unknown sound
- Specific material designation
- remote
- System control number
- (OCoLC)802279445
Subject
- Wales
- Biobanks -- Law and legislation
- Biobanks -- Law and legislation
- Biobanks -- Law and legislation -- Great Britain
- Biobanks -- Management
- Biological Specimen Banks -- ethics
- Biological Specimen Banks -- legislation & jurisprudence
- Databases, Genetic -- ethics
- Databases, Genetic -- legislation & jurisprudence
- Electronic books
- England
- Government Regulation
- Great Britain
- LAW -- Administrative Law & Regulatory Practice
- Medical & healthcare law
- Public Policy
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<div class="citation" vocab="http://schema.org/"><i class="fa fa-external-link-square fa-fw"></i> Data from <span resource="http://link.umsl.edu/portal/Governing-biobanks--understanding-the-interplay/citdLV8hI-E/" typeof="Book http://bibfra.me/vocab/lite/Item"><span property="name http://bibfra.me/vocab/lite/label"><a href="http://link.umsl.edu/portal/Governing-biobanks--understanding-the-interplay/citdLV8hI-E/">Governing biobanks : understanding the interplay between law and practice, by Jane Kaye [and others]</a></span> - <span property="potentialAction" typeOf="OrganizeAction"><span property="agent" typeof="LibrarySystem http://library.link/vocab/LibrarySystem" resource="http://link.umsl.edu/"><span property="name http://bibfra.me/vocab/lite/label"><a property="url" href="http://link.umsl.edu/">University of Missouri-St. Louis Libraries</a></span></span></span></span></div>
