Coverart for item
The Resource When children die : improving palliative and end-of-life care for children and their families, Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors

When children die : improving palliative and end-of-life care for children and their families, Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors

Label
When children die : improving palliative and end-of-life care for children and their families
Title
When children die
Title remainder
improving palliative and end-of-life care for children and their families
Statement of responsibility
Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors
Contributor
Subject
Language
eng
Summary
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals exemplify "medicine with a heart." At worst, families' encounters with the health care system leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs are -- and are not -- being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do not -- and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury
Member of
Cataloging source
N$T
Dewey number
362.1/75/083
Index
index present
LC call number
RJ249
LC item number
.W445 2003eb
Literary form
non fiction
Nature of contents
  • dictionaries
  • bibliography
NLM call number
  • 2003 D-145
  • WS 200
NLM item number
W567 2003
http://library.link/vocab/relatedWorkOrContributorDate
1931-
http://library.link/vocab/relatedWorkOrContributorName
  • Field, Marilyn J.
  • Behrman, Richard E.
  • Institute of Medicine (U.S.)
http://library.link/vocab/subjectName
  • Terminally ill children
  • Terminally ill children
  • Palliative treatment
  • Terminal Care
  • Child
  • Health Policy
  • Patient Participation
  • Professional-Family Relations
  • Terminal Care
  • Terminal Care
  • United States
  • MEDICAL
  • Palliative treatment
  • Terminally ill children
  • Terminally ill children
Label
When children die : improving palliative and end-of-life care for children and their families, Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors
Instantiates
Publication
Bibliography note
Includes bibliographical references and index
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
  • ""Front Matter""; ""Contents""; ""Preface""; ""Acknowledgments""; ""Reviewers""; ""Summary""; ""Introduction""; ""Patterns of Childhood Death in America""; ""Pathways to a Childâ€?s Death""; ""Communication, Goal Setting, and Care Planning""; ""Care and Caring from Diagnosis Through Death and Bereavement""; ""Providing, Organizing, and Improving Care""; ""Financing of Palliative and End-of-Life Care for Children and Their Families""; ""Ethical and Legal Issues""; ""Educating Health Care Professionals""; ""Directions for Research""; ""References""; ""Appendix A Study Origins and Activities""
  • ""Appendix B Prognostication Scores""""Appendix C Assessing Health-Related Quality of Life in End-of-Life Care for Children and Adolescents""; ""Appendix D Cultural Dimensions of Care at Lifeâ€?s End for Children and Their Families""; ""Appendix E Bereavement Experiences after the Death of a Child""; ""Appendix F End-of-Life Care in Emergency Medical Services for Children""; ""Appendix G Education in Pediatric Palliative Care""; ""Appendix H Progress in Pediatric Palliative Care in New York Stateâ€?A Demonstration Project""; ""Appendix I Committee Biographical Statements""; ""Index""
Control code
52855822
Dimensions
unknown
Extent
1 online resource (xx, 690 pages)
Form of item
online
Isbn
9780309502153
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Specific material designation
remote
System control number
(OCoLC)52855822
Label
When children die : improving palliative and end-of-life care for children and their families, Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors
Publication
Bibliography note
Includes bibliographical references and index
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
  • ""Front Matter""; ""Contents""; ""Preface""; ""Acknowledgments""; ""Reviewers""; ""Summary""; ""Introduction""; ""Patterns of Childhood Death in America""; ""Pathways to a Childâ€?s Death""; ""Communication, Goal Setting, and Care Planning""; ""Care and Caring from Diagnosis Through Death and Bereavement""; ""Providing, Organizing, and Improving Care""; ""Financing of Palliative and End-of-Life Care for Children and Their Families""; ""Ethical and Legal Issues""; ""Educating Health Care Professionals""; ""Directions for Research""; ""References""; ""Appendix A Study Origins and Activities""
  • ""Appendix B Prognostication Scores""""Appendix C Assessing Health-Related Quality of Life in End-of-Life Care for Children and Adolescents""; ""Appendix D Cultural Dimensions of Care at Lifeâ€?s End for Children and Their Families""; ""Appendix E Bereavement Experiences after the Death of a Child""; ""Appendix F End-of-Life Care in Emergency Medical Services for Children""; ""Appendix G Education in Pediatric Palliative Care""; ""Appendix H Progress in Pediatric Palliative Care in New York Stateâ€?A Demonstration Project""; ""Appendix I Committee Biographical Statements""; ""Index""
Control code
52855822
Dimensions
unknown
Extent
1 online resource (xx, 690 pages)
Form of item
online
Isbn
9780309502153
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Specific material designation
remote
System control number
(OCoLC)52855822

Library Locations

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      38.710138 -90.311107
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