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The Resource When science offers salvation : patient advocacy and research ethics, Rebecca Dresser

When science offers salvation : patient advocacy and research ethics, Rebecca Dresser

Label
When science offers salvation : patient advocacy and research ethics
Title
When science offers salvation
Title remainder
patient advocacy and research ethics
Statement of responsibility
Rebecca Dresser
Creator
Subject
Language
eng
Summary
"Biomedical research today has a high public profile, largely because of patient advocacy. Following in the footsteps of HIV/AIDS activists, advocates representing an array of patient groups are now vocal partners in the research enterprise. Advocates want research practices and policies to be more responsive to the people who must live with the burdens of illness. This book shows how advocates have transformed health research, often - but not always - for the better." "Dresser is the first to examine patient advocacy through the lens of research ethics. She reveals the many ways in which a quest for cures and improved therapies shapes advocacy work. She exposes the bright and dark sides of patients' expanded opportunities to enroll in clinical trials and join researchers in planning and evaluating studies. She considers the virtues and drawbacks of giving patients more influence over how the government invests its research dollars. She argues that advocates should do more to promote ethical human studies and responsible media reporting about research." "Patient advocates can help make research more ethical, but advocacy raises ethical issues of its own. This book clearly and vividly recounts the advocacy contribution to research and explores the thorny ethical issues facing research advocates."--BOOK JACKET
Cataloging source
DLC
http://library.link/vocab/creatorName
Dresser, Rebecca
Dewey number
174/.2
Index
index present
LC call number
R727.45
LC item number
.D74 2001
Literary form
non fiction
Nature of contents
bibliography
http://library.link/vocab/subjectName
  • Patient advocacy
  • Medical ethics
  • Ethics, Medical
  • Patient Advocacy
  • Research
Label
When science offers salvation : patient advocacy and research ethics, Rebecca Dresser
Instantiates
Publication
Bibliography note
Includes bibliographical references (pages 173-206) and index
Carrier category
volume
Carrier category code
  • nc
Carrier MARC source
rdacarrier
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Control code
44750820
Dimensions
24 cm
Extent
xii, 215 pages
Isbn
9780195143133
Lccn
00062388
Media category
unmediated
Media MARC source
rdamedia
Media type code
  • n
Label
When science offers salvation : patient advocacy and research ethics, Rebecca Dresser
Publication
Bibliography note
Includes bibliographical references (pages 173-206) and index
Carrier category
volume
Carrier category code
  • nc
Carrier MARC source
rdacarrier
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Control code
44750820
Dimensions
24 cm
Extent
xii, 215 pages
Isbn
9780195143133
Lccn
00062388
Media category
unmediated
Media MARC source
rdamedia
Media type code
  • n

Library Locations

    • Thomas Jefferson LibraryBorrow it
      1 University Blvd, St. Louis, MO, 63121, US
      38.710138 -90.311107
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